One in 8 births in Ontario is to someone with a physical, sensory, or developmental disability. Birthing parents with disabilities experience significant barriers accessing health care around the time of pregnancy, including physically inaccessible care spaces, communication problems with providers, and negative provider attitudes. However, less is known about disabled parents’ experiences accessing pediatric health care for their children. We are using health records data on all children in Ontario, and interviews with parents with disabilities, service-providers, and decision-makers, to study pediatric health care access in children of parents with disabilities. Our research will show the importance of using a family-centred approach to pediatric health care that considers not just the accessibility needs of the child but also those of the parent.
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People on this project
Principal Investigator: Hilary Brown; Co-Investigators: Eyal Cohen, Astrid Guttmann, Yona Lunsky, Natasha Saunders, Simone Vigod, Jennifer Zwicker
Partners
Children’s Healthcare Canada, CNIB, Hydrocephalus Canada, March of Dimes Canada, Muscular Dystrophy Canada, Provincial Council for Maternal and Child Health, Spinal Cord Injury Ontario, Surrey Place
Project funders
Canadian Institutes of Health Research